Tuesday, January 3, 2012

The nitty, gritty details.

I will start from the beginning just in case there is some woman out there who is ignoring a situation that just doesn't feel right. For me, I have felt a lump in my left breast for probably eight months now. Crazy, right? Well, maybe not so crazy when you are only 38 years old with big lumpy boobs and no immediate family history of breast cancer. Finally, due to my husband's nagging (Thanks, babe.), I got it checked out by my ob/gyn. He scheduled me a mammogram...which then lead to a follow-up ultrasound...which then lead to three roto-rooter style biopsies and two cyst aspirations...which then lead me to here- a diagnosis.

Specifically, all three of my biopsies came from my left breast and all three samples came back positive for invasive lobular carcinoma. Don't worry. I have already googled those three words a million times, and ILC is a type of cancer that begins in the milk-producing glands. Only about 10% of all invasive breast cancers are of this type. (Crap...I hope that people still want to research it.) The biopsies also indicate that I am Estrogen and Progesterone Receptor positive. According to my doctor, this is a "good" cancer. It means after the cancer is removed, I can take medication for five or more years that will suppress my hormones, and all will be well. When I met with my doctor a couple of weeks ago, she indicated I could go with a lumpectomy and radiation or with a mastectomy. Either way, I get new boobs due to a law passed in 1998 that says insurance must provide for that. (God bless America.)

Since my conversation with the breast surgeon, I have met with a plastic surgeon that explained the procedures associated with each type of surgery. Also, I have had two MRIs. Unfortunately, I have recently learned that the MRIs indicate more "areas of concern." This time on my right side. With this new knowledge, there may be no choice of treatment plans. To tell the truth, I am leaning toward a double mastectomy anyway. I want these puppies off. Give me fake fun bags. I don't want to be looking over my shoulder the rest of life waiting to do this all over again. Turns out, I'll be paranoid anyway though, as the path report indicated that I may be at increased risk for signet ring gastric carcinoma. (Googled that one already, too...stomach cancer). Sucks, sucks, sucks. So where am I now? Well, tomorrow I go in for yet another ultrasound to investigate these "areas of concern." I am hoping there is no need for another biopsy because that has been so far the absolute worst part. After the ultrasound, I'll meet with the breast surgeon again. This whole process seems awfully slow. Jeez...isn't there cancerous crap growing exponentially in my body?

Let me add that comments are appreciated. While I don't want any sympathy, I do want to keep my friends and family updated and informed. Plus, I love when people tell me survivor stories. Getting cancer is sort of like getting a new car. All of a sudden you realize how many people have that same car out there. Lots of women have been through this and came out the other side. Can't hear enough of those stories.

28 comments:

  1. Thanks for sharing in this way. I want to know all the details all along the way, so I'll follow your blog and nag you by text and hunt you down!!

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  2. Well, SHIT, Anna. That sucks for so many reasons. I don't have a story of my own, but a friend in MN just finished her treatment. And she LOVES her new boobs. I'm so glad you have a wonderful, nagging husband. We all thank him. And love you. I'll be following you.

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  3. New Fun Bags!! Inspiration is often difficult to find, but your positive approach has truly inspired me. This was a brilliant idea and I will continue to follow your posts. I don't know you very well, only via Amanda/Curtis but I laughed while reading the post, which felt wrong, but right. Keeping you and yours in my thoughts and prayers.

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  4. Love you and am praying for you almost every moment of my day!!

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  5. Am I allowed to say that I giggled when I read "fun bags?" :-)

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  6. Dear Anna,
    I'll try very hard not to blather on about how awesome you are, how much you don't deserve this, and how much I wish this were not so. So, to summarize all these sentiments I'll just say--FUCK!

    Ok, now that I got that out of my system, I'd like to share a book that I found very inspirational recently when my mom was battling cancer--When God and Cancer Meet by Lynn Eib. The book isn't all unicorns and rainbows, but it is about the miracles--big and small--that are possible when faced with cancer.

    Also, I want you to know that your experiences have motivated me to get that baseline boob-squish pronto.

    Peace, love, strength, and happiness to you as you kick this disease right in its rotten teeth.

    Love you Anna.

    Always,
    Gretchen (Hardee) Thompson

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  7. Anna, I completely empathize with how slow it seems when you're going to one appointment after another just
    waiting for action. It's totally frustrating. In the six months we waited for Silas's transplant I felt like ripping out my hair or just doing the operation my damned self. But when it's all over it will all seem like a blur. I know that you will be just fine. You have amazing friends and family supporting you.

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  8. You are strong and amazing Anna! I will be thinking about you every day. Steve's mother survived breast cancer last summer and is just fine now! Love to you and your family.

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  9. Mom is now celebrating 6 years of survivorship from--you guessed it--breast cancer. Macon was disappointed that she didn't get "new fun bags," since he was looking forward to picking out a replacement pair "any size he wanted." Long story short--you got this, and with the love & laughter of those around you, you'll get through it. Support systems are HUGE in making the difference, but you know that. . . we'll help in anyway we can, so keep us in the loop, and know that we're behind you, every step of the way!

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  10. That SUCKS!!! I will be praying for you, and I am happy to help with your sweet boys any old time you need.

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  11. I echo all the expletives from above, all the prayer promises, and all the sentiments! My BF from 11th grade - her mom is a survivor:) I learned two weeks ago that another mom friend of two is going through the exact same thing... My heart broke for her and her family also. It breaks, not because you guys can't beat this but because of the stress, strain and emotion I know you all are facing! But like you, she has a great attitude and is looking forward to her "fun bags"!!! ((Hugs)) to you!

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  12. Hey Mrs. Butler...
    So, I know I am just one of your "old students", but hopefully it's okay with you if I count myself as one of your friends and keep up with your blog updates. :)

    ...I wanted to tell you about my momma. She was diagnosed with breast cancer when I was 12 years old, and has been a survivor for 10 years. The diagnosis was "infiltrating carcinoma with lobular features", and she had chemo, a double mastectomy, radiation, and full reconstructive surgery. If you want to pick her brain about anything, get details of her experience, or whatever else - please don't hesitate to let me know :)
    In many ways her diagnosis and battle with breast cancer brought us closer together as a family, as well as closer to God. I hope that you find it will open doors for the same type of growth with you and your three guys. We'll be prayin for you! <3

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  13. Wow - so sorry to hear your news, but very glad to see how you seem to be handling it. I don't have a story of my own (and hope not ever to have one), but know others that do and their positive attitudes carried them through. Keep smiling... keep praying... and keep listening to that husband of yours!!

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  14. Dang girl!!!! My thoughts and prayers are with you and your family:):) I have a strong family history of breast cancer ... So, I have been through amazing and not so amazing things with the "C" word! Anything you need, I am here for you: a bottle of wine, cooking for all of you, or an ear to scream, yell, laugh or cry in!

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  15. I gave birth to you (9+ pounds!), helped you through boo boos', braces, several times with a broken teenage heart, head lice (sorry), birthing babies, and losing Derek. It all seems so small and inconsequential now but like always I am there with you and will be with you on the other side of this journey. I love you so much and I am so proud of you.

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  16. Thanks for sharing! You are a dang good writer as well. I will be keeping up and you guys will be in my prayers...

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  17. 1984:My mother was diagnosed with an 'inoperable and terminal' cancer called endometrial sarcoma.
    1991: The inoperable cancer was surgically removed.
    2005: She died cancer free.

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  18. Leave it to you to tell jokes. I absolutely hate you are going through this but you are probably one of the strongest friends I have. And you can't ask for a more nagging husband than Ken (sorry Ken). You know what I mean. I will follow you through this rough patch and we'll have Boone's Farm on the other side!! Please let me know if there is anything I can do. Do you mind if I ask my prayer warriors to pray for you and the family? We are pretty awesome when we get on our knees! Again...you know what I mean! Much love, and prayers and thoughts coming your way!! Love you!! Pam

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  19. A great attitude and sense of humor can get you through many things and you have both!! All my good thoughts are with you just in case, but I feel optimistic about what they can do these days. I can think of a handful of cancer survivors (our age) and many more who are older. I know you'll be glad to get through all the medical visits though!

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  20. Anna, my sister went through bladder cancer a few years ago and is absolutely fine and cancer free now. Medical science has made incredible advances.
    Thank you so much for sharing this with all of us. Even though I now live 1200 miles away, I consider you a great friend and want to be there for you, if I can.
    I just hit 40 and got the first referral for a baseline mammogram. I have put it off for a month; haven't even made the appointment yet. I want you to know that I went to my desk, found the referral and will make the appointment tomorrow. Thanks. :)

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  21. Anna, so far, I only fear cancer. My observation shows that spirit is a significant factor in winning anything. You have always had a winner's heart. I trust you will put another one in the win column.

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  22. Anna,thanks so much for keeping us all in the loop, your attitude and humor during this time is such a testament of just how awesome you are!!! The entire Wilson family adore you and your family and we are so blessed to have you all in our lives!!! Fun bags?? Really?? I am at work reading this and I think my staff think I am nuts for the sudden burst of laughter coming out of my office, you kill me!!!

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  23. I'm speechless. Sending hugs and prayers.

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  24. First off...I love you and think you are one of the most special young women I've ever met. Sorry I waited till now to say that but that's what people do isn't it. Now with that said, I think you are so wise to consider a double mastectomy. That's what Mom did. I didn't understand it at the time but after talking to her later and after listening to the women that came to her rescue to tell their stories, I agreed. The way she put it was, she didn't have to worry about the other one betraying her and she wanted a matched set! Another wonderful thing I remember was the "Sisterhood" of surviviors that came to her rescue. As the oldest daughter it was always my place to take care of everyone but that time I didn't know what to do to help or fix things. Those women made her laugh, helped her cry, let her be angry and gave her advice. Some had never met her before but stopped in Bracy's because a friend of a friend asked them to check on her for them. I know you will have that support, I see it here, right now, on your blog and it's just begun. I will continue to keep you in my thoughts and in my prayers daily. Faith can help us heal. I believe that with all my heart. I know many people will be caring and praying right along with me. But just know, one more "sister" here in NC has you on her mind! I laugh and joke with Ran & Gina about sending them my "sister magic" when they are having a stressful time or a bad day. I'll be sending some of that "sister magic" to you also!

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  25. Anna, I love you, my friend. I will be here and pray for you daily. Survivor stories: my aunt diagnosed with breast cancer in both breasts, double mastectomy, and LOVES her new fun bags!! She is doing well! My father diagnosed with thyroid cancer, had his thyroid removed and is doing amazing, my pastors wife-breast cancer, double mastectomy, and looks great with her new boobs--and doing amazing, and the list goes on.... You will do this!

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