Friday, September 21, 2012

Why? That is the question.


The million dollar question is why? Why me? Why at 38 years old? The inner scientist in me needs to know. If something caused my cancer that I can't control, then so be it. If something caused my cancer that I can control, I want to know.

In an effort to answer the question, I agreed to a genetic test. I just got the results. My report reads, "The personal history of cancer made the patient (me) a candidate for genetic testing for hereditary breast and ovarian cancer syndrome (caused by mutations in the BRCA1 and BRCA2 genes). This testing showed NO MUTATION DETECTED by comprehensive gene sequencing of BRAC1 and BRAC2. Thus, the cancer diagnosis was most likely NOT related to a mutation in one of the genes."

This is good news for my relatives. I celebrate this news and rejoice. My mom, aunts, cousins, and future granddaughters probably don't have the genetic mutations in the breast cancer genes either. Yay! Fantastic. It means I and my kin are no more at risk for ovarian cancer than any other average woman...which is 2% in her lifetime. It means my relatives probably won't follow in my footsteps and get breast cancer.

While this is great news, I still feel unsettled. The bottom line is that if my cancer wasn't in the genes then non-hereditary factors caused my breast cancer. Hmmm. What? Birth control pills? Did I not breastfeed long enough? I should have exercised more. I ate too much meat/ junk food/ milk/soy. I drank too much wine. I worry too much and the stress caused it. The big question is do I now make radical changes in my life to keep these environmental factors from causing my cancer to resurface again? Probably. I mean I do intend to eat better, exercise more, drink less, but hell, we all intend to do these things with or without the cancer history. The thing is though that I should probably just concentrate on living right now. I should probably not blame my pre-cancer self for anything. I am letting that pizza-eating, wine-drinking, gave-her-kids-a-bottle woman off the hook. I can guarantee that I made bad choices. I can guarantee that I coulda/shoulda/woulda done things better, but no matter how much soul-searching I do, the fact remains that one day, I will die. There aren't choices that are going to prevent that.

However, I am not dying today! Today, I am going to do some yoga and I'm not going to stress about it. I just wanted to blog the news for my family. One thing I have relished through this process is information. I have scoured the internet for other people's stories and it is only fair that I provide mine. If we keep communicating, we can not only learn more about the causes and effects of breast cancer, we can overcome it. That way, even though we all will someday die, we won't have to die from breast cancer. We can use that damn pink ribbon for another cause.

Hurry up and wait.


Hi, cancer blog. It has been a while. What have I been up to, you ask? Well, healing. I had the surgery. I am done with the chemotherapy, all 16 treatments. I am done with the radiation, all 25 treatments. I am done with the cancer center. I am now busy forgetting about cancer. I don't want to talk about cancer really. I don't want to write about it. I want this entire year in my rear view.

Now, I am in the waiting place...the most frustrating place ever.

For one, I am waiting for my skin to heal so I can schedule my boob implant surgery and nipple reconstruction. (Right now, I have Barbie boobs, little round mounds with no nipple. I still have the expanders in...not the permanent boobs yet.)

I started my hormone therapy and am waiting to see if my body tolerates my new medication okay. I am a month in and so far so good. I have hot flashes every night and I break out in an itchy rash whenever I actually try to exercise. I am perpetually bitchy, but other than that, I am tolerating this estrogen-robbing Tamoxifen okay. I'm going to keep swallowing the pill every day. Estrogen causes my cancer to grow, and this medication keeps my estrogen low.

I am waiting to start a clinical trial. I soon will be adding either Metformin or a placebo to my list of meds. The medical peeps think insulin and estrogen and breast cancer could all somehow be related, and I have volunteered to be a guinea pig. Honestly, I only agreed to it because the only real side effect mentioned for Metformin is weight loss and well, that is one side effect I wouldn't mind. Knowing my luck, I'll get stuck in the control group with the placebo.

I am waiting to see if cancer stays away. Now my life turns into a series of diagnostic tests and screens to see if the cancer comes back. This fact, this waiting place, frustrates me the most.

So what have I been up to? Healing...and waiting...and trying to forget...and living.